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237: Holding Space for Hope : The Final Episode of 2024

Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support

Release Date: 12/18/2024

237: Holding Space for Hope : The Final Episode of 2024 show art 237: Holding Space for Hope : The Final Episode of 2024

Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support

"Hope isn't about avoiding the hard truths. It's about staying grounded in them and still believing that something good is possible."- Katie Taylor  In this final episode of 2024, Katie dives deep into the meaning of hope, exploring its role in navigating challenges for parents, children and Child Life Specialists. Reflecting on personal experiences and heartfelt conversations with families, this episode unpacks how hope isn’t blind optimism but a source of strength that coexists with pain and uncertainty. With stories, reflections, and an invitation to carry hope into the new year,...

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236: The Mix of Joy & Grief through Medical Parenting (autism, lissencephaly and lennox gastaut syndrome) – Joanne's Story show art 236: The Mix of Joy & Grief through Medical Parenting (autism, lissencephaly and lennox gastaut syndrome) – Joanne's Story

Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support

"Life is always in the mix of joy and grief, and those things coexist. But this is how I’m going to deal with it." - Joanne De Simone In this episode of the Child Life On Call Podcast, Joanne De Simone shares her journey as a parent raising two sons with disabilities. From navigating her eldest son Benjamin’s rare brain malformation, lissencephaly  and complex medical needs to supporting her younger son Sebastian, who is on the autism spectrum. Joanne discusses the challenges, victories, and personal growth she’s experienced. As a mother and special education teacher, and now an...

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235: A Mother’s Journey of Love, Loss, and Resilience (crohn's and ulcerative colitis) - Kathy's Story show art 235: A Mother’s Journey of Love, Loss, and Resilience (crohn's and ulcerative colitis) - Kathy's Story

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“If anybody was to ask me what is one of my biggest strengths, I have to tell them it's resilience… You can throw almost anything at me and I can handle it. I mean, there isn't anything any bigger in this world than losing a child.”-Kathy In this heartfelt episode, Katie Taylor sits down with Kathy, a mother who shares her journey of raising and caring for her daughter Lauren  through multiple medical challenges and eventual passing. Kathy’s story is both heart-wrenching and inspiring. Kathy reflects on the emotional, physical, and logistical challenges of managing long hospital...

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234: Expert Child Life Tips for Supporting Children Through an Upper GI Procedure show art 234: Expert Child Life Tips for Supporting Children Through an Upper GI Procedure

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  Today's episode is dedicated to the loving memory of Dr. Meredith Hitch, a cherished pediatric gastroenterologist at Ochsner Baton Rouge.   “You want to make sure that you are ready to be able to prepare not only yourself but your kiddo.” - Emily Martinec, CCLS   In this episode host Katie Taylor chats with Emily Martinec, another experienced Child Life Specialist. These two dive into the complexities of preparing children for an upper GI procedure. They provide valuable insights and practical tips for both parents and fellow specialists, sharing lessons learned from their...

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233: From NICU Nurse to NICU Mom: Premature Twins born at 33 weeks - Brittney’s Story show art 233: From NICU Nurse to NICU Mom: Premature Twins born at 33 weeks - Brittney’s Story

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A huge thank you to our sponsor of today's podcast,  30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important.   Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This...

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232: Preparing and Supporting your child: A son with Breath Holding Spells-Alessandra's Story show art 232: Preparing and Supporting your child: A son with Breath Holding Spells-Alessandra's Story

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A huge thank you to our sponsor of today's podcast, 30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important.   Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes...

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231: Child Life Specialist Secrets: Flu Shot Prep Strategies Every Parent Should Know show art 231: Child Life Specialist Secrets: Flu Shot Prep Strategies Every Parent Should Know

Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support

Child Life Specialist Secrets: Flu Shot Prep Strategies Every Parent Should Know Thank you to the sponsor of today's podcast: In this episode of the Child Life On Call Podcast, hosts Katie Taylor and Emily Martinec, both certified child life specialists, discuss strategies for preparing, supporting, and responding to children during flu shots. The conversation extends to other medical experiences, offering developmentally appropriate ways to engage children. They emphasize collaboration with medical professionals, highlight coping techniques, and provide resources like the Support Spot app...

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230: Navigating Childhood Cancer: Supporting families through her own experience - Heather's Story show art 230: Navigating Childhood Cancer: Supporting families through her own experience - Heather's Story

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230: Navigating Childhood Cancer: Supporting families through her own experience - Heather's Story  "We’ve joined a club that nobody wants to be a part of, but the good part is we have the best members." A huge thank you to our sponsor of today's podcast, 30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and...

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229: Trusting your parental Instincts when addressing your child's chronic pain- A son with Juvenile Arthritis- Kim’s Story show art 229: Trusting your parental Instincts when addressing your child's chronic pain- A son with Juvenile Arthritis- Kim’s Story

Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support

"Trust your gut. If your parent radar comes up and says this is not right, keep pushing." – Kim   In this episode, Katie Taylor speaks with Kim Miller, a mother whose journey navigating her son Grant’s diagnoses of juvenile arthritis reshaped her life. Kim shares how her relentless advocacy led her family through unimaginable challenges, including managing chronic pain and finding the right medical care. Her inspiring story unfolds from the hardships of watching her son struggle to walk, to his incredible transformation into an NFL player. The episode highlights the critical role of...

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228: Early Diagnosis, Advocacy and Equity: A daughter with Cystic Fibrosis- Nikki's Story show art 228: Early Diagnosis, Advocacy and Equity: A daughter with Cystic Fibrosis- Nikki's Story

Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support

"We are the experts on our daughter and we deserve a say, and we deserve to be given the time to ask questions." – Nikki DeLeo  We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website.    In this heartfelt episode, host and Certified Child Life Specialist Katie Taylor speaks with Nikki DeLeo, a mother of Taylor, her daughter who has Cystic Fibrosis (CF). Katie and Nikki discuss Nikki’s journey navigating her daughter Taylor's...

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More Episodes

"Hope isn't about avoiding the hard truths. It's about staying grounded in them and still believing that something good is possible."- Katie Taylor 

In this final episode of 2024, Katie dives deep into the meaning of hope, exploring its role in navigating challenges for parents, children and Child Life Specialists. Reflecting on personal experiences and heartfelt conversations with families, this episode unpacks how hope isn’t blind optimism but a source of strength that coexists with pain and uncertainty. With stories, reflections, and an invitation to carry hope into the new year, this episode is a comforting reminder of resilience and connection.

 

Key Highlights

  • Reflecting on the Year: A heartfelt wrap-up of 2024 with reflections on challenges, growth, and achievements in child life advocacy and care.
  • Unpacking Hope: Hope is often misunderstood as blind positivity, but it’s actually about survival and resilience in the face of reality.
  • The Role of Hope in Healthcare: For families navigating diagnoses or healthcare challenges, hope provides strength and a way to keep moving forward, even amidst uncertainty.
  • Children and Hope: Children express hope in simple yet profound ways, teaching us to approach challenges with courage and trust.
  • A Message to the Child Life Community: Encouragement for continued growth, innovation, and using technology to expand child life’s impact on families.
  • An Invitation to Reflect: Listeners are encouraged to reflect on their own hopes and carry them into the new year.
Resources for Listeners:
  • SupportSpot App: A free 7-day trial available on iOS and Android, designed for families, clinicians, and child life specialists to support children through healthcare experiences.
  • Child Life On Call Website: Explore resources and previous episodes, and learn more about child life services at ChildLifeOnCall.com.
  • Advocacy Abby's Episode (Coming Soon): Look out for the upcoming episode in January featuring Abby’s story of hope after her son’s near-fatal drowning accident.

 

A HUGE thank you to our sponsors: 

BeginHealth Prebiotics: Nutrition support for healthy digestion. Use code “ChildLifeOnCall” to get 25 percent off. 

30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important. 

Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child’s favorite beverages.

  • 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)🥇
  • Applies to subscription and one-time orders
  • Applies to first 1 subscription orders
  • Limited to one use per customer

 

Meet the host: 

Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.

Instagram.com/childlifeoncall

Facebook.com/childlifeoncall

linkedin.com/in/kfdonovan