Navigating SEN Parenting: Tools for Thriving with Sharona Smith
Release Date: 10/09/2025
The SENDcast
Today is Fibrodysplasia Ossificans Progressiva (FOP) Awareness Day, and to mark the occasion we’re sharing an episode focused on raising awareness of this rare condition. In this conversation, Nicky Muller - a former trustee of FOP Friends and mother of Isla, who has FOP - joins Dale to share practical insight into supporting children with rare conditions and to tell Isla’s inspiring story. Nicky explains that FOP causes the body’s soft tissues to progressively turn into bone, often after flare-ups triggered by injury or sometimes viruses. She highlights how unpredictable this is, and...
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Bright Futures’ research estimates that around 270,000 young people (age 5–24) miss 20% or more of their education each year due to long-term illness. The consequences for qualifications, employment and wellbeing are severe - for example, 79% of 18-24 year‑olds who are out of work due to ill health only have qualifications at GCSEs or below, compared with 34% of their peers. These young people don’t just lose learning: prolonged absence damages social connections, confidence and everyday school experiences. “Returning to normal” needs careful planning, not a simple reinstatement of...
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The needs around SEND in schools are increasing - both in numbers and complexity of needs – and many schools are struggling with the best way to support their learners effectively. They want to do the best for their students, but the DfE provides very limited guidance on supporting learners with SEND. Jordan Garrett from Sensory Classroom joins Dale to discuss ‘assessing complex learners’. Jordan brings a wealth of experience from specialist and mainstream settings, plus years of curriculum and resource development, and offers practical, classroom-tested advice. Their discussion...
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Did you know that common infections, like strep throat, can cause a neuroinflammatory response affecting the brain? Today we’re raising awareness of difficult to diagnose and often misunderstood conditions – Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS). Tina Coope, a former teacher and parent whose daughter experienced sudden neuropsychiatric symptoms, explains how PANS and PANDAS present, why they’re often missed, and what schools can...
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In recognition of International Purple Day today, Catherine Hodder, Head of Policy, Influencing & Youth Voice at Young Epilepsy joins Dale to discuss ‘Understanding epilepsy’s impact on children and young people’. Epilepsy affects around 1 in 200 children in the UK, yet 1 in 3 children with epilepsy do not get the support they need to fully participate in school life. Epilepsy is one of the most common conditions affecting children and young people, yet it is often misunderstood. Seizures can be subtle and are frequently missed or mistaken for inattention, many school staff do not...
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Did you know that children with Down syndrome have a different learning profile? Ahead of World Down Syndrome Day this Saturday, Sarah Holton from Down syndrome UK, joins Dale to tell us how we can ‘support children with Down syndrome to reach their full potential’. Sarah is a specialist advisory teacher and parent to two children, one of whom has Down syndrome. She shares practical, research‑informed strategies to help children with Down syndrome thrive. Why listen? Understand the Down syndrome learning profile (strengths like visual learning; challenges like hearing, visual acuity,...
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This is a special episode focusing on the new White Paper and the SEND reforms consultation. Last week, I published my response and reflections — not just on the White Paper and the consultation itself, but also on what they mean in the wider context of the current SEND system, the Curriculum and Assessment Review, and the new Ofsted Inspection Framework. It turned into quite a big document… about 35 pages in total. There’s a lot in there to digest, and a few people asked whether there might be an audio version. So here we are. In this episode, it’s just me, reading through my response...
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Young carers often take on adult responsibilities, balancing school, social life, and caregiving, all while navigating the emotional impact of disability in their families. This is an increasingly important area of discussion, particularly as schools are now required to report the number of young carers within their settings for the national census. I’m delighted to share today’s inspirational discussion with Kasia Thompson, a Teaching Assistant and Young Carer Coordinator at St Regis CE Academy – ‘Young Carers: Voices That Matter’. Kasia has developed an award-winning initiative...
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In this special episode of SENDcast, host Dale speaks with Steph Barnett, the show planner for the . Together, they discuss the inception and significance of these events, which aim to create inclusive spaces for neurodivergent individuals and their families. Launched in 2025, the shows are designed to provide vital information, support, and a sense of belonging for attendees, offering a unique blend of professional insights and personal journeys. With a series of four events scheduled for 2026—Cardiff in April, Wigan in June, Coventry in July, and Glasgow for the first time in September -...
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Teaching Assistants (TAs) are the unsung heroes in schools - and an incredible resource. Yet their impact is often limited when teachers aren’t equipped to work with them effectively. We’re missing out on a lot of potential by not optimising how TAs support learning. In this episode, Sara Alston, a renowned SEND and safeguarding consultant, joins Dale to discuss ‘working effectively with TAs’. “I would much prefer to talk about ‘learning support assistants’ because their role is to support learning, not to assist the teacher.” Sara Alston What you can expect from this...
info_outlineWhen a doctor or professional asks for details about when, why and where your child’s meltdown occurred, unless you have the most incredible memory, it’s unlikely you’ll be able to remember the finer details. Triggers, timings, environments are all helpful in understanding a child’s behaviour, but how can you keep track of them?
“If I had to go speak to my GP or anyone and they said to me, you know what's been going on in the last six months, I'd say, I have no idea.”
Sharona Smith
Dale had a heartfelt conversation with Sharona Smith, the founder and CEO of Thrive Creations. As a mother of twins, one with ADHD, Sharona tells us about her journey moving to the UK and the challenges she faced with her son. She opens up about her experiences, including the struggles she encountered and how a particularly intense meltdown inspired her to create tools that support both parents and SEND children.
Drawing on her background as a SEN teacher, Sharona sought a better way to document her son’s behaviour to identify patterns that could enhance her support for him. This led to the development of the ‘Don’t Just Survive: Thrive Journal’, which she explains can ease the journey for SEN families. By recognising patterns, parents can gain valuable insights into their child’s behaviour - a true game changer.
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About Sharona Smith
I'm Sharona, mum of twins (one of whom has ADHD). Moved to the UK from South Africa in 2022 (when the twins were 2 years old). Started Thrive Creations in October 2024 after breaking down due to my son's intense meltdown and needing something to support my journey.
Contact Sharona
https://www.facebook.com/profile.php?id=61568284555871
https://www.instagram.com/thrivecreationsuk/
Useful Links
- B Squared Website – www.bsquared.co.uk
- Meeting with Dale to find out about B Squared - https://calendly.com/b-squared-team/overview-of-b-squared-sendcast
- Email Dale – dale@bsquared.co.uk
- Subscribe to the SENDcast - https://www.thesendcast.com/subscribe
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