Episode 271: AJ's Mom & Dad
Losing a Child: Always Andy's Mom
Choose Joy. This is the motto that today's guests, Jen and David, decided that their family would follow after a prenatal ultrasound showed that their fourth son AJ would be born with not one, but two newborn abnormalities. He had achondroplasia as well as a rare congenital heart defect. They knew that AJ was facing a complex medical future, but they decided that they would face all these struggles with joy-filled hearts. Throughout AJ's 44 days of life, Jen and David chose joy each day. David described AJ as a 'little man with a big purpose.' His life was a roller-coaster of ups and downs,...
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Episode 270: Honoring Your Grief
Losing a Child: Always Andy's Mom
Since this week's livestream fell on Veteran's Day here in the US, it made Gwen and I think about ideas of sacrifice and honor. We set aside this day to honor veterans and the sacrifices that they made while fighting to defend this country. Military awards are often given as an honor for military heroism or outstanding service. Over a military career, a serviceperson might earn many such awards which can be displayed on military uniforms. Grieving people go through many sacrifices themselves after losing loved ones. We lose not only our child but often our sense of purpose and security....
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Episode 269: David Kessler - David's Dad
Losing a Child: Always Andy's Mom
When David Kessler's publicist asked if he could come on the podcast to promote his newest workbook, Finding Meaning: Grief Workbook: Tools for Releasing Pain and Remembering with Love, I felt honored. David Kessler is one of the world's foremost experts on grief and loss. He has written six best-selling books over the years, including two that he co-authored with Elisabeth Kubler-Ross. He founded the website , which boasts over 5 million yearly visits. Despite these accolades, I admire David most for his approach to life after becoming a bereaved dad. When David's younger son, David,...
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Episode 268: Alina's Mom
Losing a Child: Always Andy's Mom
'Is life still worth living?' 'Will I ever be happy again? These are questions often asked by bereaved parents. They are asked quietly amongst other grieving parents or therapists. They are often left unsaid entirely but still plague us inside. We are afraid to voice them, afraid to think of what others might do or say - afraid that we will offend our living family members if they learn that these questions are in our heads. Today's guest, Jae Hee, was having these very thoughts in the months after her 5-month-old daughter, Alina, died of a genetic disease, but no one, not even her family,...
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Episode 267: Henry's Mom
Losing a Child: Always Andy's Mom
Today's guest, Elizabeth, lived through a nightmare after moving her oldest son, Henry, into college. Elizabeth never imagined that on his first day of class, only days after leaving a smiling Henry in his dorm room, he would be killed in a freak accident on campus. Elizabeth's safe world was completely shattered. She learned that accidents happen on college campuses and that Henry was not the only US college student who would never come home again. One year later, Elizabeth was understandably worried when Henry's younger brother got ready to move across the country to start college. As...
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Episode 266: Ryan & Chris's Mom
Losing a Child: Always Andy's Mom
After Chana lost her oldest son Ryan to a drug overdose five years ago, she was understandably devastated. Still, bit by bit over time, she started to feel like her family may be on its way to recovery. Her second oldest son, Chris, had been crushed when he lost his older brother and best friend. He struggled with relationships and work after losing Ryan. Chris even moved back home to get more support from his family. Then, 395 days after losing Ryan and just as things seemed to be improving, Chris suddenly died as well. As bad as Chana thought life could get, it was now worse. Two of her four...
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Episode 265: Alex & Adri's Mom
Losing a Child: Always Andy's Mom
In the last minutes of this week's interview, today's guest, Ellie, wanted to share one last thing with listeners as she looked back on her 25-year journey of grief after losing her two young children. She compared grief to the ocean. She said that sometimes, the ocean is clear and calm and beautiful while at other times storms come and it feels tumultuous. I find this an incredibly fitting comparison as I sit here writing this while a catastrophic hurricane, Hurricane Milton, is landing in Florida. At this time yesterday, the ocean likely looked beautiful and inviting along Florida's beaches...
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Episode 264: Finding a little purpose
Losing a Child: Always Andy's Mom
After the death of your child, everything becomes more challenging. Previously easy tasks like going to the grocery store suddenly seem almost impossible. Getting out of bed and showering in the morning no longer feels automatic. You may wonder how you will be able to get through the next weeks, months, and years without your child. In today's podcast, Gwen and I sit down to talk about ways to try to find a little purpose to get out of bed and live each day. Having other family members to love and support can give us motivation to keep living, but sometimes that is not quite enough. Sometimes...
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Episode 263: Chloe's Mommy
Losing a Child: Always Andy's Mom
Today's guest, Marj, always wanted her daughter, Chloe, to be a normal kid. When Marj and her husband first adopted Chloe, she already had medical concerns, but at 20 months of age, their lives were turned upside down when Chloe was diagnosed with cancer. Chloe lived the next 14 years of her life with cancer, but Marj continued to try to make her life as normal as possible. When Chloe's parents sent her to summer camp for kids with cancer (now called Campfire Circle), Marj and Chloe took a flight to where Chloe would be able to get on a bus for camp. As a kid, Marj had loved going to summer...
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Episode 262: Kate's Mom
Losing a Child: Always Andy's Mom
Losing a child affects us in ways that we never possibly could have imagined. We are quite honestly not the same people who we were before experiencing this profound loss. When today's guest, Lisa, lost her 19-year-old amazing, talented daughter, Kate, to a rare, aggressive cancer a few months ago, she truly felt lost. She said that she lost confidence in herself. She felt like she couldn't do anything even to the point that she started feeling like a bad cook and a bad driver. The guilt and all of the 'what ifs' became consuming for Lisa. She found herself focusing on many past decisions....
info_outline"I don't know how you do it."
I have heard this phrase on and off in my life, but that was nothing compared to how often I have heard those words since Andy died. I know people mean well when they say, "I don't know how you do it," but I never really know how to respond. I don't feel any stronger or more resilient than anyone else. Quite the opposite is the case actually. I often feel weak and alone.
Today's guest, Jessica, heard "I don't know how you do it" for many years as well. It started shortly after her 5-year-old daughter, Dalia, was diagnosed with MERRF syndrome, a degenerative mitochondrial disease. Over the years as other parents watched their children gain milestones, Jessica and her family watched Dalia lose hers - first, her ability to walk and speak and then the ability to eat on her own. Eventually, Dalia even lost her sweet smile.
At the time of Dalia's death, her bedroom looked more like an ICU room than the bedroom of a teenage girl, but until Dalia died, Jessica didn't notice any of that. She just focused on being a loving mom to her sweet daughter. 'I don't know how you do it?' Really? It was just normal life for her. There was nothing heroic or extraordinary happening. Jessica just did what she had to do, living every day with her family hoping to give them all the best life possible.
Jessica at some point decided to write a book about her experiences raising and losing Dalia while also suffering through the deaths of both of her parents and sisters. The result of this effort was 'Breath Taking: A Memoir of Family, Dreams, and Broken Genes' available here on Amazon. She also began to think about the phrase 'I don't know how you do it' more deeply. How does anyone 'do it' actually? Jessica decided to start her podcast which she aptly named, 'I Don't Know How You Do It' to explore the question more deeply. Each week, she interviews someone whose life seems unimaginable from the outside. Through the podcast, Jessica hopes to show listeners that there isn't a magic answer. We can all do it, no matter what our circumstances. Each day, we all get out of bed and do it and so can you.