Episode 271: AJ's Mom & Dad
Losing a Child: Always Andy's Mom
Choose Joy. This is the motto that today's guests, Jen and David, decided that their family would follow after a prenatal ultrasound showed that their fourth son AJ would be born with not one, but two newborn abnormalities. He had achondroplasia as well as a rare congenital heart defect. They knew that AJ was facing a complex medical future, but they decided that they would face all these struggles with joy-filled hearts. Throughout AJ's 44 days of life, Jen and David chose joy each day. David described AJ as a 'little man with a big purpose.' His life was a roller-coaster of ups and downs,...
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Episode 270: Honoring Your Grief
Losing a Child: Always Andy's Mom
Since this week's livestream fell on Veteran's Day here in the US, it made Gwen and I think about ideas of sacrifice and honor. We set aside this day to honor veterans and the sacrifices that they made while fighting to defend this country. Military awards are often given as an honor for military heroism or outstanding service. Over a military career, a serviceperson might earn many such awards which can be displayed on military uniforms. Grieving people go through many sacrifices themselves after losing loved ones. We lose not only our child but often our sense of purpose and security....
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Episode 269: David Kessler - David's Dad
Losing a Child: Always Andy's Mom
When David Kessler's publicist asked if he could come on the podcast to promote his newest workbook, Finding Meaning: Grief Workbook: Tools for Releasing Pain and Remembering with Love, I felt honored. David Kessler is one of the world's foremost experts on grief and loss. He has written six best-selling books over the years, including two that he co-authored with Elisabeth Kubler-Ross. He founded the website , which boasts over 5 million yearly visits. Despite these accolades, I admire David most for his approach to life after becoming a bereaved dad. When David's younger son, David,...
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Episode 268: Alina's Mom
Losing a Child: Always Andy's Mom
'Is life still worth living?' 'Will I ever be happy again? These are questions often asked by bereaved parents. They are asked quietly amongst other grieving parents or therapists. They are often left unsaid entirely but still plague us inside. We are afraid to voice them, afraid to think of what others might do or say - afraid that we will offend our living family members if they learn that these questions are in our heads. Today's guest, Jae Hee, was having these very thoughts in the months after her 5-month-old daughter, Alina, died of a genetic disease, but no one, not even her family,...
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Episode 267: Henry's Mom
Losing a Child: Always Andy's Mom
Today's guest, Elizabeth, lived through a nightmare after moving her oldest son, Henry, into college. Elizabeth never imagined that on his first day of class, only days after leaving a smiling Henry in his dorm room, he would be killed in a freak accident on campus. Elizabeth's safe world was completely shattered. She learned that accidents happen on college campuses and that Henry was not the only US college student who would never come home again. One year later, Elizabeth was understandably worried when Henry's younger brother got ready to move across the country to start college. As...
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Episode 266: Ryan & Chris's Mom
Losing a Child: Always Andy's Mom
After Chana lost her oldest son Ryan to a drug overdose five years ago, she was understandably devastated. Still, bit by bit over time, she started to feel like her family may be on its way to recovery. Her second oldest son, Chris, had been crushed when he lost his older brother and best friend. He struggled with relationships and work after losing Ryan. Chris even moved back home to get more support from his family. Then, 395 days after losing Ryan and just as things seemed to be improving, Chris suddenly died as well. As bad as Chana thought life could get, it was now worse. Two of her four...
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Episode 265: Alex & Adri's Mom
Losing a Child: Always Andy's Mom
In the last minutes of this week's interview, today's guest, Ellie, wanted to share one last thing with listeners as she looked back on her 25-year journey of grief after losing her two young children. She compared grief to the ocean. She said that sometimes, the ocean is clear and calm and beautiful while at other times storms come and it feels tumultuous. I find this an incredibly fitting comparison as I sit here writing this while a catastrophic hurricane, Hurricane Milton, is landing in Florida. At this time yesterday, the ocean likely looked beautiful and inviting along Florida's beaches...
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Episode 264: Finding a little purpose
Losing a Child: Always Andy's Mom
After the death of your child, everything becomes more challenging. Previously easy tasks like going to the grocery store suddenly seem almost impossible. Getting out of bed and showering in the morning no longer feels automatic. You may wonder how you will be able to get through the next weeks, months, and years without your child. In today's podcast, Gwen and I sit down to talk about ways to try to find a little purpose to get out of bed and live each day. Having other family members to love and support can give us motivation to keep living, but sometimes that is not quite enough. Sometimes...
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Episode 263: Chloe's Mommy
Losing a Child: Always Andy's Mom
Today's guest, Marj, always wanted her daughter, Chloe, to be a normal kid. When Marj and her husband first adopted Chloe, she already had medical concerns, but at 20 months of age, their lives were turned upside down when Chloe was diagnosed with cancer. Chloe lived the next 14 years of her life with cancer, but Marj continued to try to make her life as normal as possible. When Chloe's parents sent her to summer camp for kids with cancer (now called Campfire Circle), Marj and Chloe took a flight to where Chloe would be able to get on a bus for camp. As a kid, Marj had loved going to summer...
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Episode 262: Kate's Mom
Losing a Child: Always Andy's Mom
Losing a child affects us in ways that we never possibly could have imagined. We are quite honestly not the same people who we were before experiencing this profound loss. When today's guest, Lisa, lost her 19-year-old amazing, talented daughter, Kate, to a rare, aggressive cancer a few months ago, she truly felt lost. She said that she lost confidence in herself. She felt like she couldn't do anything even to the point that she started feeling like a bad cook and a bad driver. The guilt and all of the 'what ifs' became consuming for Lisa. She found herself focusing on many past decisions....
info_outlineBefore our children are even born, we have dreams for them. We think of what they will be like as babies and the personalities they will develop as they grow. These dreams only get more real after they are born. Clara's dad, Joe, says that as he sang to Clara as a baby, he imagined what it would be like to dance with her as a little girl and even watch her get ready for her prom. It is truly one of the joys of parenthood - imagining a blissful, happy future.
When today's guests, Jenna and Joe, went to Jenna's 28-week ultrasound, however, they got their first 'kick in the gut' that the blissful future they were imagining might not be possible. Baby Clara was suffering from SVT (supra ventricular tachycardia), and Jenna needed to be hospitalized immediately. They tried numerous medications, but little Clara entered into the world as a premature infant. Clara had numerous complications in her first 5 1/2 months of life, but eventually, they were able to bring her home, although still with a central line for her IV nutrition.
Despite all of these hurdles, Jenna describes this time at home as 'amazing.' They started to dream again, hoping that Clara would be able to lead a relatively full life. That all changed 5 1/2 months later (10 1/2 weeks before this interview was recorded when after a relatively routine medical procedure, Clara suddenly died on Mother's Day - Jenna's first Mother's Day. Jenna had looked forward to this day for weeks, telling all her friends how happy she was that she wouldn't be in the hospital as had been the case the year before when she was still pregnant with Clara, but the day had turned into a nightmare.
Their vibrant, happy amazing little girl was suddenly gone, and with her, all of the new little family's dreams went with her. Now, Jenna and Joe are slowly trying to put together the pieces of their life once again. They are moving to be closer to family and trying to find grief support in any way they can. Now their biggest dream for their little smiling Clara is to make sure that they are not the only ones who remember her and let others know that Clara is still a part of their lives.