A Microtia Atresia Diagnosis: Hearing Aids, Surgery and a Journey of Hope [REPOST] - Kim's Story(255)
Release Date: 05/21/2025
When Your Baby is Diagnosed with Type 1 Diabetes: Marlee's Story
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
“My baby went from fussy to lifeless in hours—by the time we reached the PICU, they said he might have had six hours to live.” In this episode, TikTok Influencer and Medical Mom , a pediatric speech-language pathologist turned full-time mom, shares the whirlwind diagnosis of her 12-month-old son Bain with Type 1 diabetes and severe DKA, the traumatic hospital stay, and the everyday advocacy that followed. Raw, practical, and deeply hopeful. Why this episode matters Emotional clarity: what a Type 1 diagnosis really feels like in infancy Practical advocacy: scripts, choices, and...
info_outline
Surgery for Pediatric Drug-Resistant Epilepsy and Infantile Spasms (278) - Audrey's Story
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
Join us for an incredibly candid and informative conversation with Audrey Vernick, a passionate advocate and the Director of Patient and Family Advocacy for the Pediatric Epilepsy Surgery Alliance. Audrey shares the powerful 21-year journey of her son, Bennett, who suffered a stroke in utero and was later diagnosed with the catastrophic epilepsy known as Infantile Spasms. Audrey recounts the emotional process from the difficult labor and early concerns dismissed as normal reflexes, to the terrifying moment she saw his MRI and realized half of his brain was black due to a massive stroke. This...
info_outline
A Speech Language Pathologist's Tips to Helping Your Child Thrive (277)-Luba's Story
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
"The excitement that the kids feel when they are seeing you... and they know today's session with Ms. Luba and they can't wait to see you." - Luba Kaplan When a child enters the medical system, parents often meet many specialists beyond doctors and nurses, including Speech-Language Pathologists (SLP). These professionals are vital members of the healthcare team, doing more than just helping with speech. SLPs, as Luba Kaplan explains, also explains how they look at every area of the child's development to ensure children are being fully supported. In this episode, we introduce Luba Kaplan, a...
info_outline
From Early Diagnosis to the Power of Community and Humor in Type 1 Diabetes (276)- Stacey's Story
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
When Stacey’s toddler was diagnosed with Type 1 diabetes, her family’s world turned upside down. In this episode, she shares the early warning signs, the struggle of those first two weeks of injections, and how humor and community turned fear into resilience. Parents will gain hope, advocacy tips, and coping strategies for managing a chronic illness diagnosis. What You’ll Hear How Stacey recognized the 4 Ts of diabetes: Thirsty, Tired, Thinner, Toilet The reality of hospitalization, finger sticks, and injections with a toddler Coping strategies: medical play, humor, and...
info_outline
NICU, Down syndrome and Infant Loss: A Grief Story and Children's Book( 275) - Teejay + Jon's Story
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
In this incredibly personal and moving episode, we sit down with Teejay and Jon, the authors of the gentle children's book , to share the full, raw story of their daughter, Nadiya. Their journey began with an unexpected connection—a transatlantic online romance between Teejay in Australia and Jon in Canada—that quickly turned into a marriage grounded in a shared life and purpose. With Teejay's extensive background in early childhood development and their experience fostering a young man with Down syndrome, they felt prepared when Nadiya was diagnosed with Trisomy 21 (Down syndrome) early...
info_outline
US News Children's Hospital Rankings 2025: Why the BEST Outcomes Demand the Human Touch (with Ben Harder)
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
Is the "best" hospital just about technology and surgical success? Ben Harder, the journalist who oversees the methodology and data for the U.S. News Best Children's Hospitals Rankings (2025), joins Katie to break down what truly defines quality in pediatric care. Ben shares his deeply personal family story—a tragedy 50 years in the past that drives his commitment to making data-driven information accessible today. This episode is a crucial guide for parents, explaining the three core pillars of the rankings: structure/resources, processes of care, and patient outcomes. We dive into why...
info_outline
A Heart Transplant Survivor Helps Her Son Face His Own: Danon’s Disease (273) – Brittany's Story
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
Psychologist and heart-transplant recipient Dr. Brittany Clayborne shares how her own medical journey prepared her to guide her son Micah through sudden heart failure, an LVAD, and a life-saving transplant. She unpacks the family’s rare Danon’s disease diagnosis, post-transplant cancer (PTLD), and the everyday realities after transplant—meds, setbacks, and hope. You’ll learn Dr. Brittany’s BRAVE framework for hard moments, how rituals sustain connection during long hospital stays, and how Micah turned his experience into action with Transplant Teens and My Brave Journal. This...
info_outline
How a Bone Marrow Transplant Cured her daugther’s Sickle Cell Anemia (272)-Maite's Story
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
In this episode of Child Life On Call, guest Maite Rodriguez shares her daughter Alessia’s inspiring journey with sickle cell disease (SCD)—from diagnosis at birth and painful crises to finding a cure through a pediatric bone marrow transplant at Memorial Sloan Kettering. Maite discusses the challenges of long-term treatments like hydroxyurea, the emotional toll of hospitalizations, and her family’s decision to pursue IVF to create a genetic match. She also introduces her bilingual children’s book, , which helps families explain sickle cell to children, siblings, and communities....
info_outline
How One Mom Navigated her daughter’s Severe Food Allergies (271)- Susanna's Story
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
From “colic” that never eased to four pages of confirmed allergens, Susanna Peace Lovell recounts the first years of parenting her daughter, Arizona—years marked by nonstop crying, full-body eczema, and relentless advocacy. When a hypoallergenic formula finally brought relief around 18–19 months, Susanna could breathe—and begin reframing motherhood with compassion for her child and herself. She shares practical allergy survival tips (from table toppers to EpiPens), how autism diagnosis informed self-advocacy, and why community through We Are Brave Together mattered. This conversation...
info_outline
Empowering Parents Through Play-Based Physical Therapy (270)- Allison's Story
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
In this episode, Dr. Allison Mell—pediatric PT and founder of Tots on Target—breaks down how therapy for kids doesn’t have to feel overwhelming. She shares real talk about what progress actually looks like, why play is so powerful, and how parents can weave therapy into everyday life without adding stress. From NICU graduates to toddlers finding their stride, Allison reminds us that tiny wins build up to big milestones. Her approachable, down-to-earth advice helps parents feel supported, capable, and ready to advocate for their child’s needs. Resources mentioned: Tots on Target...
info_outline
“You make the best decision for yourself and your family—and you stick with it.”- Kim Pena
What happens when you’re handed unexpected news at your child’s birth—and there’s no clear roadmap ahead? In this reposted episode, educator and mom Kim Pena shares her powerful journey as the parent of a child born with Microtia Atresia, a rare congenital condition affecting the ear. Kim was one of Katie’s very first guests on the Child Life On Call podcast, and her story is still a listener favorite to this day. In this repost, Katie kicks off the episode by giving us a quick update about Kim’s son.
From discovering her son’s diagnosis at birth to making emotional, high-stakes decisions about surgery and hearing aids, Kim walks us through her family’s deeply personal experience with compassion, clarity, and humor.
In this episode, you'll learn:
✅ What Microtia Atresia is and how it affects children
✅ How Kim and her husband navigated hearing loss, reconstructive surgery, and insurance battles
✅ Why early intervention with hearing aids changed everything
✅ What recovery and long-term care looked like for their son
✅ How to find trusted resources and support if your child is diagnosed
Kim’s story offers encouragement, practical wisdom, and a reminder that joy often shines through the hardest moments.
Timestamps & Key Topics
⏱️ [00:00] – Introduction: Meet Kim and Thomas
Kim’s background as an educator, and how her son’s birth revealed an unexpected diagnosis
⏱️ [02:00] – What Is Microtia Atresia?
Definition and how it affects the outer and middle ear
Kim learns about the condition immediately after birth
⏱️ [04:00] – Family History and Diagnosis Challenges
The connection to Kim’s brother-in-law
Why this condition wasn’t caught on ultrasound
⏱️ [07:00] – Building a Support System
How Kim’s relationship with her father-in-law became essential
Finding emotional and logistical support from someone who’s been there
⏱️ [09:00] – First Surgeries and Hearing Tests
Understanding Thomas’s hearing loss
The process of getting tested, hearing aids, and early therapy
⏱️ [11:00] – Choosing the Right Surgery
Exploring different surgical options, including rib graft and Medpor
Why Kim’s family chose a single-surgery approach
⏱️ [13:00] – Surgery Day and Recovery
A 13-hour surgery and the emotional toll
Why recovery in California brought unexpected connections
⏱️ [16:00] – Post-Surgery Life & Daily Care
What healing looked like in the months after
Kim’s advice on establishing trust, prepping a toddler, and using distraction
⏱️ [20:00] – The Bittersweet Nature of Change
Letting go of “his little ear”
Gratitude for what the journey has taught their family
⏱️ [22:00] – Research, Advocacy & Making Confident Choices
The role of online communities and navigating defensiveness
Why Kim recommends aiding early—and being unapologetic about your choices
⏱️ [27:00] – A Life-Changing Hearing Aid Moment
The first time Thomas could hear clearly—how it changed their world
Why Kim wishes she had recorded that moment
⏱️ [29:00] – Final Reflection: Raising a “Joy Boy”
Despite everything, Thomas’s joy and resilience shine through
Why Kim’s journey is one of perspective, peace, and purpose
Resources & Links
📌 Learn More About Microtia Atresia:
-
microtia.net – Up-to-date education & support
-
earcommunity.org – Parent-led advocacy and insurance help
-
microtiasurgery.com – Thomas’s surgeon with videos and guides
-
pediatricent.com – Additional surgical resource (Dr. Bonilla, San Antonio)
Share Your Thoughts!
Know someone raising a child with Microtia Atresia? Share this episode to let them know they’re not alone.
💬 Leave a comment or tag us on Instagram: @childlifeoncall
🎙️ Subscribe & Review: Help more families find these stories by leaving a review on your favorite podcast platform.
📩 Contact us: lyndsey@childlifeoncall.com
The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child are experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided.