Ep. 228: Understanding Functional Neurological Disorder (FND) with Dr. Samantha Levy

We are excited to have Samantha Levy, PhD join the show again this week to discuss Functional Neurological Disorder (FND). Dr. Samantha Levy is a clinical psychologist specializing in youth with chronic pain disorders. She uses a biopsychosocial approach to address both physical and emotional struggles, working with children, families, and parents to help them align the mind and body for improved functioning. Dr. Levy also runs parent groups, writes a parenting blog for Creative Healing for Youth in Pain, and works as a psychologist for Whole Child LA.

Functional neurological disorder (FND) is a condition in which often debilitating neurological symptoms appear without a clear medical cause, and this episode helps make some sense of FND, from the ways it manifests (paralysis, seizures, sensory disruptions) to the underlying emotional and psychological factors that ultimately shape it.

We explore why FND tends to surface in individuals with a history of anxiety, depression, trauma, and/or other medical conditions and how social media and peers, particularly during the COVID-19 pandemic, have played a role in its seeming to be more common. In this episode, you will gain insight into how staying calm, validating emotions, and avoiding reinforcement of symptoms can help support recovery.

Dr. Levy helps us understand that treatment for FND is not a one-size-fits-all approach. We discuss the importance of a multidisciplinary approach instead, including individual therapy to address emotional triggers, physical therapy to rebuild control over the body, and family therapy to create a stable support system. We also stress how schools and healthcare providers play a key role in recovery, and we explore strategies to ensure that the right team is in place.

This episode of the podcast ultimately offers a message of hope – that FND can feel overwhelming, but with the right interventions, many children see significant improvement, and the experience can even lead to personal growth for the entire family!

 
Show Notes:

[2:46] - Dr. Levy explains how FND causes real neurological symptoms without medical explanation and has historically been misdiagnosed.
[4:49] - FND can involve paralysis, sensory loss, and/or seizures, resulting from the brain misinterpreting signals.
[7:14] - FND often affects individuals with anxiety and can spread via social influence.
[10:13] - Dr. Levy discusses how pandemic-related stress and social media exposure contributed to FND symptoms.
[12:22] - Dr. Levy argues that identifying emotional, physical, and environmental triggers for FND episodes helps prevent and reduce symptoms.
[15:14] - To avoid reinforcing FND symptoms, parents should minimize attention during non-epileptic episodes.
[18:45] - Professional guidance is very important for parents who have children with FND.
[19:19] - Encouraging open emotional expression helps children with FND take on triggers.
[22:43] - Therapy for teens with FND tends to address anxiety, trauma, and coping strategies.
[25:22] - Dr. Levy discusses how physical therapy, guided imagery, and emotional validation help teens with FND regain body confidence.
[28:38] - Dr. Levy reflects on how a child’s FND episodes decreased significantly after shifting family dynamics.
[30:32] - Overprotectiveness can actually worsen FND symptoms, so teens should maintain safe, independent activities.
[33:39] - Parents should seek support themselves because their stress can worsen their child's FND symptoms.
[35:45] - Dr. Levy points out that FND can be a wake-up call, prompting families to develop healthier ways to handle emotions.
[38:00] - Dr. Levy reflects on how a girl’s involuntary kicking symbolized suppressed anger, stressing a need for emotional expression.
[41:27] - Various resources such as reactive programs and CHIP webinars help provide support for FND treatment.

Links and Related Resources:

• CHYP’s Website

• Dr. Samantha Levy, PhD - “Navigating a Functional Neurological Disorder (FND) Diagnosis in Children: Understanding, Coping, and Finding Support”

• Episode 220: How to Support Children and Teens with Chronic Pain with Dr. Samantha Levy

 

Connect with Us:

• Get on our Email List

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• Get Support and Connect with a ChildNEXUS Provider

• Register for Our Self-Paced Mini Courses: Support for Parents Who Have Children with ADHD, Anxiety, or Dyslexia 

 

Connect with Dr. Samantha Levy:

• CHYP’s Website

• CHYP - Our Team