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Autism & Grief

Grief Out Loud

Release Date: 05/31/2024

Fifty-Seven Fridays: Myra Sack On Love, Loss & Grieving Her Daughter show art Fifty-Seven Fridays: Myra Sack On Love, Loss & Grieving Her Daughter

Grief Out Loud

In this deeply moving episode we talked with about the love, loss, and legacy of her daughter, Havi. Diagnosed with Tay-Sachs disease at just 15 months old, Havi's life was brief but profoundly impactful. Myra shares how she and her family navigated the unbearable reality of their daughter's illness and death, including transforming their Shabbat ritual into "Shabbirthdays" held every Friday to celebrate Havi's life.   Myra reflects on the arduous medical rollercoaster that led to Havi's Tay-Sachs diagnosis, the challenges of navigating a world that struggles to support the...

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Living With Incurable Cancer: Caroline Catlin On Time, Grief, & Mortality show art Living With Incurable Cancer: Caroline Catlin On Time, Grief, & Mortality

Grief Out Loud

What does it mean to live with an incurable illness while navigating grief, time, and the complexity of human connection? In this episode of Grief Out Loud, we sit down with —writer, artist, and grief care worker—to explore her experience of living with an incurable brain cancer diagnosis.  Caroline shares how her relationship with cancer has evolved over the past six years, from the early days of fighting for a diagnosis to the ongoing reality of regular scans and the uncertainty of what’s next. She speaks candidly about anticipatory grief, the way mortality shapes her daily...

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What Now? Carla Fernandez & Renegade Grief show art What Now? Carla Fernandez & Renegade Grief

Grief Out Loud

In this episode of Grief Out Loud, we welcome back , co-founder of , to talk about her new book, , in which she explores the question: "Now what? What are we supposed to do after someone dies?" Carla reflects on the death of her father, the unconventional paths she’s taken to process her grief, and how The Dinner Party came together from a desire to create non-traditional spaces for young adults navigating loss. In this conversation we delve into the dominant narratives around grief — and how the few that do exist may not fit for most of us. From potluck meals to altar...

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A Tribute To My Dad - Bryan Jung & This Is Why show art A Tribute To My Dad - Bryan Jung & This Is Why

Grief Out Loud

In this episode Bryan Jung talks about the experience of being only nine years old when his father, a prominent lawyer in the Korean community, was tragically shot by another lawyer. Fifteen months later and just nine days before Bryan’s 11th birthday, his father died. Bryan reflects on the impact of his father’s death, the strength of his family, and how he continues to honor his dad’s legacy. He shares how his grief evolved over time, the role of community support, and the lessons he’s carried into his own life. Bryan also discusses founding , an online...

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How Many Siblings Do You Have? Navigating Sibling Loss with Judy Lipson show art How Many Siblings Do You Have? Navigating Sibling Loss with Judy Lipson

Grief Out Loud

In this episode, we talk with Judy Lipson, author of A Celebration of Sisters. Judy shares her journey of sibling loss, reflecting on the deaths of her sisters—Margie, who died of anorexia, and Jane, who died in a car crash—and how their absence shaped her identity. She opens up about the complexities of sibling grief, the impact of Margie's long battle with an eating disorder, and the moment when the grief she had pushed aside for so long finally caught up with her. Through writing, ice skating, and organizing a fundraiser in their honor, Judy found ways to reconnect with her sisters and...

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When Grief & Betrayal Collide: Jessica Waite’s Story show art When Grief & Betrayal Collide: Jessica Waite’s Story

Grief Out Loud

When husband, Sean, died suddenly, she knew him as a dedicated father to their young son and a loving, engaged spouse. In her book, The Widow’s Guide to Dead Bastards, Jessica reveals the shock and heartbreak of discovering Sean's double life. What began as a devastating loss quickly became even more complex as she uncovered the many secrets he had kept—hidden debt, drug use, and infidelity. Jessica talks about the rage, confusion, and emotional turmoil of grieving someone you love while simultaneously reckoning with the truth of who they really were. She reflects on anger as a catalyst...

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Were You Close? Always A Sibling With Annie Sklaver Orenstein show art Were You Close? Always A Sibling With Annie Sklaver Orenstein

Grief Out Loud

In this episode we talk with , author of Always A Sibling: The Forgotten Mourners. Annie talks about her older brother, Ben, who died when he was deployed in Afghanistan, and how his sudden death reshaped her understanding of grief and loss. They discuss the unique challenges of sibling loss and how Annie ultimately decided to write the book she wished she had when Ben died. We Discuss: Annie’s relationship with her brother Ben and his role in her life The day Annie learned of Ben’s death and the immediate aftermath How grief intersected with anxiety The unique and often overlooked...

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What Remains: Rupert Callender on Grief, Rituals, and Redefining Funerals show art What Remains: Rupert Callender on Grief, Rituals, and Redefining Funerals

Grief Out Loud

In this episode, we talk with , author of . Ru shares his personal experience with profound childhood loss to becoming a self-proclaimed radical undertaker. We also discuss the impact of grief at different life stages, how participation in funerals can be helpful for children, and reimagining rituals to accurately reflect the life of the person who died. Main topics: Parental Loss and Early Grief: Ru reflects on the loss of his father at age 7 and his mother in his 20s, sharing how these defining losses shaped his perspective on death and grief. Boarding School and Emotional Austerity:...

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Shatterproof: Telling The Truth About Grief with Lauren Sisler show art Shatterproof: Telling The Truth About Grief with Lauren Sisler

Grief Out Loud

Grief can be shattering - and it can also reveal unexpected strength and resilience. In this episode, we’re joined by , award-winning sports broadcaster, ESPN Sideline reporter, and author of . Lauren shares her powerful story of losing her parents, who died within hours of each other during her freshman year of college, and how grief, fear, and shame, kept her from telling her story.  Lauren discusses:  The initial shock of loss.  How grief evolved for her over the years and the tools that helped.  The power of sharing her story and connecting...

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It's Okay That It's Not The Same - Grief At The Holidays show art It's Okay That It's Not The Same - Grief At The Holidays

Grief Out Loud

[This episode originally aired December, 2023] This time of year can be grueling for anyone, but particularly for those who are grieving. So, each year we put out an episode to help you feel less alone and hopefully more equipped to traverse the next few weeks. Today's guest, Melissa Peede Thompson, M.S., is a Grief Services Coordinator at Dougy Center. While she has lots of professional knowledge in this realm, we asked her to talk about her personal experience of grieving during the holidays. Melissa was six when her sister died of gun violence. She was 13 when her father died in a...

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The Autism & Grief Project is a new online platform designed to help adults with autism navigate and cope with the complexities of grief arising from both death and non-death losses. Alex LaMorie, A.A.S is a member of the project's Advisory Board and brings his lived experience with both autism and grief to this work. Dr. Kenneth J. Doka, PhD, MDiv, brings years of both professional and personal grief knowledge to his role on the project's Development Team. The Autism & Grief Project is unique - just as grief and autism are unique - and the site provides information not only for adults with autism who are grieving, but also the people who are supporting them. 

We discuss:

  • Parallels between the uniqueness of grief and the individual experience of autism
  • What Alex found to be helpul and unhelpful in his grief
  • Being open to different forms of communication and emotional expression
  • Learning to ask for help
  • The goals for the Autism & Grief Project
  • What Alex and Dr. Doka learned from being part of the project

Alex D. LaMorie, A.A.S is an undergraduate student at the University of Maryland Global Campus and autism advocate. Alex's expressive grief artwork was recently featured in the textbook Superhero Grief: The Transformative Power of Loss (2021, Routledge). He serves as an advisor on the Hospice Foundation of America's Autism & Grief Project. In his spare time, he loves movies and TV shows as well as traveling to Comic Con and Anime conventions with his older sister. Alex also loves creative writing and spending time with his New York family so he can eat the world's best pizza and bagels!

Kenneth J. Doka, PhD, MDiv, is Senior Vice President of Grief Programs at Hospice Foundation of America (HFA) and recipient of the 2019 Lifetime Achievement Award from the Association for Death Education and Counseling. He serves as editor of HFA’s Living with Grief® book series and its Journeys bereavement newsletter. He is a prolific author, editor, and lecturer; past president of the Association for Death Education and Counseling (ADEC); and a member and past chair of the International Work Group on Death, Dying, and Bereavement (IWG). In 2018, the IWG presented Doka with the Herman Feifel Award for outstanding achievement in thanatology. He received an award for Outstanding Contributions in the Field of Death Education from ADEC in 1998. Doka is an ordained Lutheran minister and a licensed mental health counselor in the state of New York.

This episode is the second in our 2024 three-part series highlighting the voices of communities who have historically been underrepresented in the grief world. The series is part of an ongoing collaboration between Dougy Center and The New York Life Foundation. We are deeply grateful for New York Life Foundation's tireless support and advocacy for children and teens who are grieving.