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Autism & Grief

Grief Out Loud

Release Date: 05/31/2024

Losing Them More Than Once - When Your Ex Dies show art Losing Them More Than Once - When Your Ex Dies

Grief Out Loud

No one is perfect and no one is just one story, but how do you grieve when the person who died was so different than the person you fell in love with? When Jenn met and fell in love with Jesse, she never imagined their relationship would unravel due to his struggles with mental health and alcohol use disorder. Jesse died in 2020 and Jenn's been left to reconcile the man she loved with the one she eventually had to leave. His death also left her unsure where her grief fits in the world of bereavement and how to support their son, whose grief is complicated by the impact his father's illness had...

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"We Never Talked About Her Again" - Susan Lieu & The Manicurist's Daughter

Grief Out Loud

, is a Vietnamese-American author, playwright, and performer. When Susan was 11 years old, her mother died from a routine plastic surgery. After she died, Susan's family stopped talking about her mother, leaving Susan on her own to figure out what happened and how to feel. Susan's debut memoir, recounts her quest to get to know her mother, avenge her death, and try with all her might to get her family to open up about it all. Susan is a compelling and accomplished storyteller, co-hosting  podcast and speaking at , the Smithsonian, and at universities and companies across the...

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Grieving The Relationship We Didn't Get To Have - Maegan Parker Brooks, PhD show art Grieving The Relationship We Didn't Get To Have - Maegan Parker Brooks, PhD

Grief Out Loud

It's our 300th episode and this conversation with Maegan Parker Brooks, PhD, is the perfect one to honor that milestone. Maegan is an Associate Professor at Willamette University and a volunteer at where she facilitates a peer grief support group for adult caregivers of teens who are grieving. Maegan is also a daughter and sister, grieving the deaths of her father, her sister Emily, and her mother. In this conversation we talk about grief and estranged relationships, relationships impacted by substance use, non-death losses, memorialization during the pandemic, and all the ways we talk to one...

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Is This Normal? Getting To Know Grief With Kendra Rinaldi show art Is This Normal? Getting To Know Grief With Kendra Rinaldi

Grief Out Loud

knows a lot about grief. When she was just 21, her sister died in a car accident. Ten years later she had a miscarriage. Ten years after that, her mother died of cancer. Professionally, she is a grief guide and host of the podcast. But she didn't always get grief. When she was 21, she didn't realize that everything she was thinking, feeling, and experiencing after her sister's death counted as grief. In the years since, Kendra's gotten to know her grief well and uses that knowledge to support others.    We discuss: The spectrum of losses Kendra's experienced Grieving her sister's...

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Building A World Worth Living In - Trends In Suicide Prevention & Postvention show art Building A World Worth Living In - Trends In Suicide Prevention & Postvention

Grief Out Loud

It might be better to ask Canada Taylor what she doesn't do in the realm of suicide prevention, postvention, and grief support rather than what she does because she seems to do just about everything and anything. This is part two of our conversation with her, so if you missed the first, , be sure to listen. In this episode, we talk about the holistic  approach she takes to suicide prevention, intervention, and postvention. An approach that focuses on building a world worth living in. A world where youth - and people of any age - have their basic needs met and can access safety, community,...

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Honoring A Great Love - Canada Taylor show art Honoring A Great Love - Canada Taylor

Grief Out Loud

Twelve years ago today - August 30th - Canada Taylor was having an amazing night. She and her husband Rick were sitting outside, talking about life and work and dreams for the future - their future. Then everything changed. Rick had a medical event, and Canada became his first responder. Hours later, she became his widow. In the twelve years since, things continued to change. Canada's two sons grew up and grew into their grief. She changed the course of her career - moving from behavioral health to suicide prevention and grief justice. Throughout all these changes, Canada has found ways to...

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My Long-Term Relationship With Grief - Barri Leiner Grant & The Memory Circle show art My Long-Term Relationship With Grief - Barri Leiner Grant & The Memory Circle

Grief Out Loud

When Barri Leiner Grant was 28, her mother Ellen died suddenly. Barri was hit with intense grief, but back then the expectation was to hurry up and get back to work and life. She didn't have the time, space, or tools to acknowledge and attend to grief. Over the past 31 years, Barri and her grief have gotten to know each other on a deep level. In this long-term relationship, she's learned that her grief gets louder each time she reaches a new milestone or faces a transition. Even with that knowing, the grief can still find ways to catch her off-guard. Recently, one of those times was...

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How They Died Matters, A Daughter's Story - Kari Lyons-Price, MSW show art How They Died Matters, A Daughter's Story - Kari Lyons-Price, MSW

Grief Out Loud

Sometimes we can't really begin to understand grief - ours or anyone else's - if we don't have space to talk about the death. The context surrounding how someone died matters and can shape our grief in meaningful ways. This was true for  who was a caregiver for her parents, Hal and Sylvia, for many years. They died three years apart, her dad in 2019 and her mom in 2022, and the circumstances of their deaths greatly impacted Kari and her grief.  We discuss: How her parents lived - and how they each died Why their death stories matter when it comes to grief The anger and resentment in...

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108 Ways To Survive Grief - Sweta Vikram show art 108 Ways To Survive Grief - Sweta Vikram

Grief Out Loud

In May of 2023, was overwhelmed with grief. In the span of three days, her father died, her father-in-law died, and it was the  9-year anniversary of her mother’s death. When she looked for information on how to survive the maelstrom of emotions, she found reassurances that she would eventually get to the other side, but nothing that showed her how to do that. So, Sweta set out to create the resource she was looking for and recently published, , a manual with 108 practical tips to survive and navigate grief.   We discuss: The overwhelm of multiple losses ...

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Embodied Practices For Tending Grief - Camille Sapara Barton show art Embodied Practices For Tending Grief - Camille Sapara Barton

Grief Out Loud

is a social imagineer who is reimagining how we define and relate to grief. As a writer, artist, and somatic practitioner, Camille is looking to create a new grief narrative expansive enough to include multiple forms of individual and collective grief, especially for queer, trans, and BIPOC communities. In Camille's book, , they offer rituals and embodied practices for feeling into and metabolizing grief.  Camille's lived experience with grieving death & non-death losses Support for grief that falls outside the traditional box Grief as a generative process Camille's learning from...

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The Autism & Grief Project is a new online platform designed to help adults with autism navigate and cope with the complexities of grief arising from both death and non-death losses. Alex LaMorie, A.A.S is a member of the project's Advisory Board and brings his lived experience with both autism and grief to this work. Dr. Kenneth J. Doka, PhD, MDiv, brings years of both professional and personal grief knowledge to his role on the project's Development Team. The Autism & Grief Project is unique - just as grief and autism are unique - and the site provides information not only for adults with autism who are grieving, but also the people who are supporting them. 

We discuss:

  • Parallels between the uniqueness of grief and the individual experience of autism
  • What Alex found to be helpul and unhelpful in his grief
  • Being open to different forms of communication and emotional expression
  • Learning to ask for help
  • The goals for the Autism & Grief Project
  • What Alex and Dr. Doka learned from being part of the project

Alex D. LaMorie, A.A.S is an undergraduate student at the University of Maryland Global Campus and autism advocate. Alex's expressive grief artwork was recently featured in the textbook Superhero Grief: The Transformative Power of Loss (2021, Routledge). He serves as an advisor on the Hospice Foundation of America's Autism & Grief Project. In his spare time, he loves movies and TV shows as well as traveling to Comic Con and Anime conventions with his older sister. Alex also loves creative writing and spending time with his New York family so he can eat the world's best pizza and bagels!

Kenneth J. Doka, PhD, MDiv, is Senior Vice President of Grief Programs at Hospice Foundation of America (HFA) and recipient of the 2019 Lifetime Achievement Award from the Association for Death Education and Counseling. He serves as editor of HFA’s Living with Grief® book series and its Journeys bereavement newsletter. He is a prolific author, editor, and lecturer; past president of the Association for Death Education and Counseling (ADEC); and a member and past chair of the International Work Group on Death, Dying, and Bereavement (IWG). In 2018, the IWG presented Doka with the Herman Feifel Award for outstanding achievement in thanatology. He received an award for Outstanding Contributions in the Field of Death Education from ADEC in 1998. Doka is an ordained Lutheran minister and a licensed mental health counselor in the state of New York.

This episode is the second in our 2024 three-part series highlighting the voices of communities who have historically been underrepresented in the grief world. The series is part of an ongoing collaboration between Dougy Center and The New York Life Foundation. We are deeply grateful for New York Life Foundation's tireless support and advocacy for children and teens who are grieving.