Episode 32: Patient Advocate, Storyteller, and Lobular Breast Cancer Survivor
Release Date: 05/10/2023
DiepCJourney Podcast
We are going to discuss the topic of scars and cover several topics related to scars on this edition of the . It is understood, anyone who has surgery will have scars of some kind. There is a mechanism to how scars heal. In plastic surgery, if you think of the Greek word, plastikós (πλᾰστῐκός it means to shape or mold. Scars are a significant consideration in plastic surgery then. I invited an expert in the field to share his expertise on the topic. My guest is joined in San Antonio, Texas in 2021. Dr. Gassman completed his plastic and reconstructive surgery residency at UCLA...
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Do most people who have nipple reconstruction have breast reconstruction? Not necessarily. Do you think about nipple reconstruction if you’ve had breast cancer and are in a consultation for breast reconstruction? We are going to answer these questions and others on this episode of the . My guest is of in San Antonio, Texas. Dr. Carpenter is passionate about utilizing her extensive expertise and experience to help transform lives through reconstructive plastic surgery. I want to point out that PRMA uses the co-surgeon model in breast reconstruction, meaning there are two...
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How much do you know about robotic surgery for DIEP flap breast reconstruction? What areas in the U.S. are performing these types of robotic surgery for those affected by breast cancer? What if I told you robotic DIEP flaps are being performed in Hawaii? It is important to share with you surgeons I meet to provide access to care for those affected by breast cancer. Thank you for listening to the podcast to find out who these surgeons are. We are going to discuss robotic surgery and DIEP flap being performed in Hawaii with my guests on this edition of the . Be sure to watch our conversation on...
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This interview is another resource provided by DiepCFoundation.org specifically providing access to care for those affected by breast cancer. The slide presentation and interview are available on the Foundation educational channel for our listeners and followers who would like to access it at . We are discussing a topic that is often discussed in my community so I reached out to my guest to share her expertise on the repair of diastasis and recognizing what a hernia or bulge might look like after autologous breast reconstruction, specifically DIEP flaps. My guest is who practices with a team...
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When you have cancer you become a patient, and advocate, a student, and yes, I said student. It’s like taking one of those classes at university that you must take to learn the topic, but you don’t really want to take it. Have you ever met someone in the breast cancer community, and you think to yourself, “Damn! They really did a good job of navigating this whole process.” They view their life before cancer. They view their life during diagnosis, after treatment, after surgery, and what that should look like to them. Then they got on with it. I met one of those people and we chat on...
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As promised, season five presents our listeners with interviews from experts and shares with you all your options for breast reconstruction surgery after mastectomy. In this episode of the the expert we interview is who collaborates with a team of surgeons at in Phoenix, Arizona. One of our goals on the podcast is to provide access to care, no matter who you choose for your breast surgery. When you dial down to autologous reconstruction, using the patients own tissue, it becomes important to research the background, skill, and collaborative team effort of the microsurgeon you choose....
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Listeners of the are familiar with the DIEP flap breast reconstruction procedure where the abdominal skin, tissue, and underlying blood vessels are used to replace the breast tissue lost due to mastectomy after being affected by breast cancer. On this episode we are going to discuss the “” in breast reconstruction. I’m speaking with of in Phoenix, AZ. He is a board-certified plastic surgeon who is specifically trained in microsurgery. It is the specialty of microsurgery that is required to perform a stacked flap procedure. Dr. Matatov and his team perform these and why I reached out...
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My guest on this episode of the is a young woman who during the height of the COVID pandemic, at only 33 years old, became diagnosed with triple negative breast cancer. Her Journey was not easy but, it is truly inspiring and motivating. She has a strong family history of distinct types of cancer. This is a quote from her website: “Tired of reactive approaches, that waited for symptoms to appear, I refused to let history repeat itself. Recognizing that others face similar challenges I knew action was needed." This quote reflects her work, her passion, and her profession. My guest is , who...
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This episode of the is our final edition in 2024. I share a discussion across continents with two women leaders I admire who engage in patient advocacy and the patient story. is well known for “” a platform where she gathers writers and bloggers sharing their stories across social media platforms. Her journey in patient advocacy began twenty years ago with a diagnosis of breast cancer. Marie poignantly tells us in the interview that, "We find when we are diagnosed with a serious illness, something is missing. We look around and see who can fix this. I discovered the person who could fix...
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Ten years ago, on December 1, 2014, I was in the trusted hands of a skilled microsurgeon who took tissue from my tummy area along with the skin and blood vessels, and rebuilt what cancer had taken away from me. I lost my breasts to a double mastectomy. For those of us who have been affected by breast cancer, a mastectomy is an amputation. The skilled microsurgeon is my guest on this episode of the . , president of in San Antonio, Texas, reconstructed my breasts using the training, skill, and compassion that makes him who he is as a breast reconstruction surgeon and is one of the finest human...
info_outlineMegan-Claire Chase is a breast cancer survivor who deals with a lot of effects from treatment and being diagnosed with lobular breast cancer at a very young age. But she excitedly begins our conversation by saying her pain melted away at the San Antonio Breast Cancer Symposium when she was able to meet patient advocates in person for the first time. Social media connects many of us but the conference we both attended in early December of 2023 allowed us to sit down together to share intimate conversations, ask each other how we are doing, and share our advocacy work. I was fortunate to be one of those advocates to finally meet her in person at the meeting.
Megan-Claire experienced strange symptoms for about two years that were left without a diagnosis. Her mother had ovarian cancer when she was pregnant with Megan-Claire. She states she felt this made her a miracle baby for her parents. Megan-Claire felt certain at some point in her lifetime she would get cancer because she has a strong history in her family. Because of this she was able to get a mammogram at age thirty-five and have it covered by insurance.
Being hyper aware of her body due to family history of cancer, the signs she saw were concerning. She noticed tiny green bruising on her legs, weight gain, loss of hair on the left side of her head, and a “zit” on the outside of her left breast. She knew something was not right. Megan-Claire shares with us she would like the medical community to be more aware that black women and other women of color will present with different symptoms that her white counterparts.
This leads us to a more in-depth conversation on health disparities, implicit biases in breast cancer care and what Megan-Claire accomplishes in her community and advocacy work to improve the communication between the patient and physician. Megan-Claire will be participating in a community event to connect patients and provide these resources June 15-21 of 2023.
The event and other ways to join Megan-Claire on social media can be found here.
National Black Family Cancer Awareness Week started by the FDA through the Oncology Center of Excellence.
Megan-Claire’s Linked Account: https://www.linkedin.com/in/megan-claire-chase/
Breast Cancer Program Director: Share Cancer Support