Episode 085: The Power of Patient Advocacy with Kristy Dickinson

Brenda welcomes her friend Kristy Dickinson, a rare disease patient, advocate, and founder of Kristy Dickinson Consulting. Together, they chat about the challenges of patient advocacy, the importance of lived experience in healthcare, and how systemic barriers often force patients and caregivers to become their own strongest advocates. They discuss the impact of delayed diagnoses, the need for a cultural shift in the medical field, and how healthcare professionals can work collaboratively with patients for better outcomes.

 

Key Takeaways:

[1:01] Brenda introduces guest Kristy Dickinson and her extensive work in patient advocacy.

[4:53] Kristy shares her seven-year journey to a rare disease diagnosis and the constant advocacy required even with a treatment plan in place.

[5:29] The healthcare system isn't designed for people who don't fit the "standard" medical profile, leading to significant delays in diagnosis and care.

[8:32] Brenda and Kristy discuss how patient concerns are often dismissed, leading to worse outcomes.

[13:34] How advocacy can prevent medical errors and why systemic changes are needed to prioritize patient voices.

[16:48] The burden of advocacy: how patients and caregivers are forced to navigate a complex system, often without support.

[20:00] The importance of keeping medical records and using data to advocate for proper care.

[22:47] The need for cultural shifts in medicine and why healthcare is ultimately a “people business.”

[25:34] The healthcare system’s lack of focus on patient experience and accountability.

[30:00] How systemic barriers discourage patients from seeking care and lead to missed diagnoses.

[37:31] The unseen consequences: how past negative medical experiences lead people to avoid seeking care when they truly need it.

[45:00] The role of lawsuits in driving healthcare improvements and ensuring accountability.

[49:58] Recognizing the expertise of patient advocates and the growing role of Chief Patient Officers in healthcare organizations.

 

Mentioned in this episode:

To learn more about the work we do at Gluckstein Lawyers, please visit Gluckstein Lawyers.

 

To learn more about Kristy: 

Kristy Dickinson: Website | LinkedIn 

 

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